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Research Handbook on End of Life Care and Society

Research Handbook on End of Life Care and Society

          
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About the Book

This comprehensive Research Handbook provides an accessible overview of research on palliative and end of life care in its social context. It examines key theories, methods and research findings, presenting crucial social science and public health perspectives. Leading and emerging international scholars discuss a range of issues including population ageing, growing pressures on health and social care systems, assisted dying and new cultural responses to human mortality and bereavement. They delve into detailed case studies, such as the genealogies of culturally specific nursing, home care in Europe, patient and public involvement in the UK, end of life care pathways in Japan and palliative care in resource-poor settings within African countries. Adopting an interdisciplinary approach, the Research Handbook also addresses models of end of life care in relation to wider society, and outlines future research priorities. This insightful Research Handbook will greatly benefit students and scholars of sociology, anthropology and social policy, particularly those who are studying public health, the welfare state and social work. It is also a vital resource for practitioners and policymakers in palliative and end of life care.

Table of Contents:
Contents 1 Scoping the field of end of life care and society 1 David Clark and Annemarie Samuels PART I Theories, methods, and boundaries in end of life care research 2 Theorising end of life care 13 Vibeke Graven, Michael Hviid Jacobsen and Helle Timm 3 Ongoing dilemmas and new approaches in palliative care and end of life care research: methods, ethics, and patient and public involvement in the United Kingdom 29 Clare Gardiner and Emilie Couchman 4 Humanities collaborations in end of life care 47 Jordan Owen McCullough and Anna Magdalena Elsner 5 Public engagement in palliative and end of life care research 61 Sonja McIlfatrick and Deborah Muldrew 6 Total pain and human gut microbiota 81 Marian Krawczyk 7 Inclusiveness in research teams: reflections on the Te Ārai Palliative Care and End of Life Research Group, a decade on 99 Tess Moeke-Maxwell, Merryn Gott and Brianna Smith 8 Plural imaginaries: reflections on end of life care from India 115 Devi Vijay PART II Culture, communication, and context 9 Homing in on societal changes in meanings around place of death 132 Renske Visser 10 Displacement and re-imagining end of life care 142 Parin Dossa 11 Belonging at the end of life: genealogies of ‘culturally specific’ nursing home care in Europe 156 Olivia Killias and Eva Soom Ammann 12 Sociocultural diversity in approaching pain at the end of life 173 Adrienne E. Strong and Megan D. Cogburn 13 Bioethical frameworks in end of life care decision-making 188 Sandra Martins Pereira, Paulo J. Borges and Pablo Hernández-Marrero 14 Cultural communication in palliative care 212 Liesbeth Mirjam van Vliet, Edison Iglesias de Oliveira Vidal, Masanori Mori, Constance Dahlin, Eve Namisango, Olaf Geerse and Diah Martina PART III Fields of practice 15 Standardisation of end of life care 232 Shimon Tashiro and Tatsuya Morita 16 Compassionate Communities 246 Bert Quintiens and Steven Vanderstichelen 17 New approaches to bereavement experience and research 268 Lucy Selman 18 Talking about dying and end of life care 291 Gitte Koksvik 19 Politics and practices of assisted dying 304 Marcos Freire de Andrade Neves 20 Death, dying, and design 319 Bruce M. Tharp 21 The arts in palliative care: critical perspectives on evidence and practice 336 Giorgos Tsiris and Jenny Baxley Lee PART IV Social inequalities 22 End of life and poverty 354 Maddy French and Yakubu Salifu 23 Barriers to accessing end of life care for minority ethnic communities 367 Sophie Law-Clucas and Jonathan Koffman 24 Gender and end of life care work 381 Merryn Gott, Tessa Morgan, Lisa Williams and Julia Slark 25 Homelessness at the end of life 399 Kelli I. Stajduhar and Ashley Mollison 26 Dying in the Margins: a case study of methods and impacts 419 Sam Quinn and Naomi Richards 27 Who gets specialised care at the end of life? 443 Stephen Connor and Carlos Centeno PART V Policy interventions 28 The opportunities and limitations of ‘choice’ at the end of life 461 Sandy Whitelaw and David Clark 29 National policies for end of life care 478 Chao Fang 30 Public health interactions with palliative and end of life care 491 David Clark and Sandy Whitelaw 31 The global spread of palliative care: how models, ideas, and practices travel 508 Natashe Lemos Dekker 32 Mapping the development of palliative care in resource-poor settings: examples from African countries and contexts 521 Eve Namisango, William E. Rosa and Yakubu Salifu 33 Palliative care as a global health issue 534 Joseph Clark 34 Concluding points and future agendas: afterthoughts and afterlives 551 Annemarie Samuels and David Clark


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Product Details
  • ISBN-13: 9781035317332
  • Publisher: Edward Elgar Publishing Ltd
  • Publisher Imprint: Edward Elgar Publishing Ltd
  • Height: 244 mm
  • No of Pages: 598
  • ISBN-10: 1035317338
  • Publisher Date: 28 Sep 2025
  • Binding: Hardback
  • Language: English
  • Width: 169 mm


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